YEA!!!! They took the "fem line" that was in my leg out today (Monday) and moved it. Now Mommy, Daddy and Grammy can hold me! I am sooooo happy to have them hold me again! I missed them very, very much. I seem to be doing better too. My Bilirubin count is down to 1.8 (normal is .3 - .6). It was 23.5 when I came into the hospital before the transplant. My pneumonia also seems to be getting better and they're hoping to stop the Albuterol treatments soon. I hope so because I hate that mask on my face. I put up with it - but I don't like it.
It seems I've stopped the bleeding inside too because (ahem) my diapers are showing that. They can also tell by my diapers
that my new liver is doing a great job getting rid of the bile out of my body. The only problem, and I hate to complain, is that I itch, itch, itch. It's because of one of the medicines I'm taking - something called a "side effect". I seem to be scratching my face in my sleep, so they're going to put mittens on me when I do. But the good thing about it is everybody plays with me to keep my mind off of it. Mommy plays "Peek -a-Boo" with me, which I just love! And Daddy says and does funny things that makes me laugh and kick my legs. They are my fun-est playmates. But my best friend right now is the Elmo that Grammy bought me. I keep him in my arms hugging him close all the time. He makes me feel better, especially when Mommy and Daddy aren't there. And, oh yeah! They moved me to another room - in the the PICU Annex. There are so many sick children where I was that they were afraid I would catch something they had - and we sure don't want that!!!
Now I have a private room, which is nice. They are hoping I will be able to move to the "step-down" unit on Wednesday or Thursday. When I do, my sweet friend, Tamara Dietrich, will come to visit me. Remember her? She wrote that really nice article in the Daily Press about me. In fact she wrote another one yesterday (Sunday) which made me feel so special. I've got a feeling, like Elmo, she will be a wonderful friend for a long time. I hope so!
Well, that's all I have to tell today. I'll try to write you again soon. Till then, I ask that God bless and keep you and thank you for your prayers.
Love,
Maggie